Gray Center SUN News

Standing Strong

My family and I recently took a walk over a sand dune along Lake Michigan during a West Michigan blizzard. At the time, little snow was falling, but we were subjected to gale-force winds as we climbed the stairs for a view of the water below. As I was pelted with wind and sand, and frequently had to grab onto a railing or hold my arms out to provide greater stability and balance, I marveled at the trees which stood so strong, seemingly unaffected, against the powerful force of the wind. Do you know how they got to be so strong? This quote sums it up well: “”Good timber does not grow with ease; the stronger the wind, the stronger the trees” (J. Willard Marriott). It’s the powerful wind, which made our hike so difficult (and at times unpleasant), that over the years has helped those trees develop a strong root system which provides a firm foundation when the wind howls around and against them.

As parents, when we welcome a child into the world, we tend to do whatever we can to protect them even as we help them to grow and flourish. When a child has special needs like a diagnosis of autism, we tend to hold him or her even more closely, sheltering them from a potentially cruel and dangerous world, and hoping to encourage their growth in a way that avoids having their differences be too noticeable to the outside world. Parents work hard to help their child succeed and to protect them from failure or harsh treatment from others. But sometimes the day comes when they suddenly realize that their child hasn’t learned the skills needed to manage on their own. They lack the connections to receive help from anyone other than their parents or immediate family members. While the parents meant well, they find that that have unknowingly secluded their children from the life lessons that would prepare them to function on their own. Without the “wind” of difficulty throughout their lives, their “root systems” remain underdeveloped, making it impossible for them to stand up to the wind on their own.

The following quote explains the danger well: “As a parent, your nature is to protect.  Sometimes fear of risks … can cause you to exclude a person with autism from their community.” (Marguerite Colston, spokeswoman for the Autism Society of America).

Naturally, it is difficult to know when to shelter and when to give a gentle push to help our children step out and experience life lessons for themselves. It’s a process of daily deliberations and decisions. We don’t need to do it alone—our community can be a source of help to us as we seek to uncover and maximize our children’s potential and assist them in being successful. There’s wisdom in the saying, “It takes a village,” as we admit to ourselves that we cannot do it on our own. Are you familiar with the inspiring story of Helen Keller? Hers is an amazing story of success in spite of being both blind and deaf. She once said, “A man can’t make a place for himself in the sun if he keeps taking refuge under the family tree.”

Some of you reading this have young children at home. You may be inspired to find ways to help your children develop new skills and understanding so that they can stand strong against the winds of daily living and of adversity. Others of you find that your children are grown, but do not have a strong root system. Although you will likely face resistance and other challenges as you work to help your grown son or daughter, you may be encouraged by this old proverb: “The best time to plant a tree is twenty years ago. The second best time is now.” It’s never too late to make healthy changes that benefit both you and your children! Even “late bloomers” can be successful. In the words of Moliere, sometimes “The trees that are slow to grow bear the best fruit.”

In my own parenting, I think back to numerous occasions when I bit my tongue instead of discouraging my children from trying something new. Although I was afraid they would experience failure or disappointment, or even ridicule, I let them chart their course. Sometimes it proved to be a difficult or painful outcome, but it gave us an opportunity to talk about how life works, and what we can learn each situation. Other times they succeeded beyond my wildest expectations, and we were all able to celebrate yet another joyous (and sometimes unexpected) success.

Best wishes as you continue to teach and nurture children and young adults toward an ability to stand strong and bear fruit!

Laurel Falvo, CFLE

Certified Family Life Educator

Executive Director, The Gray Center for Social Learning and Understanding

www.thegraycenter.org

P.S. The Gray Center is officially closed until the New Year. We’ll reopen on January 4th. We may be slow to answer phone and email messages, since our staff and volunteers will be spending time with family and friends through the holidays. Although you will not be able to visit with us in our office or utilize our library, our bookstore is always available at www.thegraycenter.org, and we will continue to process and ship your orders throughout the next two weeks.


Proactive Parents

Welcome to a special edition of the SUN News–a weekly update for The Gray Center Social Understanding Network! I’m writing this in response to the many requests I get for support for parents—note that at the end of this article, there’s information about an upcoming parent meeting in Zeeland, MI.

My husband and I try to be proactive parents! Although our children sometimes complain, they would tell you that they do not dislike us for it; in fact, during moments of honest reflection, they would likely tell you that it has earned us their respect.

What is a proactive parent?

A proactive parent wants what’s best for her children, but recognizes that sometimes they have to earn it, go without it, or lose it before they also value it.

A proactive parent allows his children to sometimes falter, fail, and fall, knowing that failure will teach them more about succeeding than his constant rescues ever could.

A proactive parent clearly spells out reasonable but high expectations, and holds firm (without giving in or back-tracking) until her children achieve them. Her children learn that their own good choices generally lead to good consequences, and their bad choices often lead to unpleasant consequences, because she consistently allows them to experience this. Although they like to blame their proactive parent for the consequences that they dislike (and all too infrequently thank her for the good ones), they eventually learn that they can receive more frequent rewards by making more good choices—and they try to take responsibility for their bad choices.

A proactive parent is gentle but firm, flexible yet consistent, empathetic but unwavering. He recognizes and respects where his rights and responsibilities end and where his children’s begin…and through his expectations and responses, teaches his children to do the same.

A proactive parent is willing to forgo present thanks and pleasure for future rewards. She recognizes that today’s trials lead to tomorrow’s triumphs, both for herself and her children.

A proactive parent knows that his children’s verbal, emotional, and physical resistance to his “no” will eventually go away when they’re ready to move on to the next request. And then he will feel stronger for holding firm, and his children, like steel refined by fire, or a tree strengthened by the wind, will also be stronger.

Proactive parents know that neither they nor their children are perfect, and while their standards are high, through unconditional love and acceptance, they create a physically and emotionally safe environment in which their children can experience both failure and success.

They may sometimes doubt their effectiveness as parents, feel guilty for being “tough” on their children, dislike the children’s sometimes hurtful responses, feel isolated and alone, and grow weary from adhering to high standards. Yet they believe that “tough love,” although it isn’t always “warm and fuzzy love,” builds character and enables people to interact more effectively with others.

Thankfully, most proactive parents catch glimpses of greatness as they go about the work of parenting. Just as she might enjoy a gleaming floor after spending hours on her hands and knees scrubbing and polishing, or catching her reflection in a window that she has worked hard to clean, a proactive parent begins to see that her efforts are reaping rewards. As his children exhibit honesty, kindness, respect, responsibility, integrity, good work ethics, forgiveness, and flexibility, he sees that they, too, are on their way toward being proactive parents —or teachers, therapists, and friends–who hold themselves and others accountable while also being kind and supportive.

Are you a “proactive parent?” Do you wish you could be? I think we need to be more deliberate in supporting parents, teachers, counselors, and others in their work of promoting social effectiveness through the types of expectations and natural consequences that I detailed in this article. In fact, I am not able to be a proactive parent alone! My husband is a huge support as he patiently provides love, encouragement, and instruction to our children and to me. We work with our children’s teachers to ensure that we all have similar expectations both at home and at school, as we teach responsibility and hold our children accountable. Grandparents and other family members, friends, and neighbors also help in the important task of raising our kids to be kind, responsible, and productive individuals. This type of teamwork is what is intended by the common saying, “It takes a village!”

Kids provide daily opportunities for us to learn to be proactive parents, including throwing a tantrum if they don’t get what they want, refusing to do their chores, asking for more money (after wasting their own), making hurtful comments,  and stressing our resolve through whining, asking incessantly, sulking, or making threats. Children around the world provide these fabulous learning opportunities for the people tasked with caring for and instructing them. The question is, what will they learn from it? What can we do to equip them with the necessary skills for being effective participants in their relationships, whether it’s with us, or with others?

I hope you’ll take a minute to respond to this article here, or on our Facebook or Twitter accounts. There’s no need for anyone to feel alone or to face difficult decisions—and stand firm in adhering to what they know is best—without the support of others around the world!

From one parent attempting to be proactive, to many others,

Laurel Falvo, CFLE

Certified Family Life Educator

Executive Director, The Gray Center for Social Learning and Understanding

www.thegraycenter.org

If you live in West Michigan, I hope you’ll join me on Tuesday, Nov. 10 from 7:00-8:30 p.m. at The Gray Center, City on a Hill Ministries, 100 Pine St., Zeeland, MI, for a “proactive parent” meeting. This will be an opportunity to support each other while learning more about the challenges proactive parents face, and creative strategies for addressing those challenges as we work toward interacting more effectively with our families. ALL parents are invited, regardless of the age of your child, or the presence of (or lack of) a particular diagnosis. Please RSVP by selecting the “proactive parent” option in our shopping cart at www.thegraycenter.org.


Delicate Ecosystems

Somewhere in the Redwood National Park in California, there’s a tree with the reputation of being the current tallest tree in the world. I’ve read that they do not publicize exactly where the tree is located, or mark it with a sign or other form of distinction. Apparently the reason for that is to protect the tree from footsteps that would harden the earth around the base of the tree, threatening the delicate ecosystem in which the tree is growing.

I wonder…are people more appreciative of the entire area, knowing that somewhere in that park is the tallest tree? Do they look at each tree and marvel at its height, wondering if perhaps that one is the tallest?

Many of you are teaching in a classroom where there is an individual diagnosed with an autism spectrum disorder (ASD). I wonder…would we teach differently if we knew that someone in the class had ASD, but we didn’t know which one? Would we explain our directions more carefully? Would we work with the entire class to foster effective social interactions, rather than focusing on the directives of one student’s IEP (individualized education plan)?

Many of you are parents of a child (or more than one child) with ASD. I wonder…would we parent differently if we accepted that our children–regardless of the presence of a diagnosis–need clear expectations, and predictable structure, including consistent, natural consequences for the choices they make? Do we parent one child differently because he or she has a diagnosis?

Now, I know that the presence of ASD is an important consideration in teaching and parenting any given individual. Information about a diagnosis can help us better understand the perspective of the individual, and approach him or her with valuable strategies that may prove helpful in our parenting and teaching—and in their learning and interacting. But I’m guessing that visitors and employees at the Redwood National Park know that every one of the trees in that park deserves protection and admiration. In the same way, we should ensure that we are working to know and appreciate each individual with whom we live and work, with or without a diagnosis, so that we can recognize and accommodate both their strengths as well as their challenges.

Perhaps a change in perspective and a renewed appreciation for each individual can help us also protect the “delicate ecosystem” of our homes, classrooms, and workplaces.

Best wishes as you continue to do this in your own corner of the world!

 

Laurel Falvo, Certified Family Life Educator

Executive Director, The Gray Center for Social Learning and Understanding

www.thegraycenter.org

P.S. If you’re like me, you may enjoy “surfing” the Internet at all hours of the day and night. Remember that our online store never closes. You can visit us at www.thegraycenter.org for our tried and true favorites, as well as newer additions such as: Adults on the Autism Spectrum Leave the Nest, Asperger Syndrome and Anxiety, Boys’ Guide to Becoming a Teen, Girls Growing up on the Autism Spectrum, Social Skills for Teenagers and Adults with Asperger Syndrome, Understanding Death and Illness and What They Teach About Life, and posters and note cards by our Gray Center girls’ group, which make great gifts for teens, teachers, and grandparents.


Living and Learning Without Instructional Manuals

Following is an article I originally wrote a couple of years ago.

Recently my 4-year-old daughter called me into her room to examine her clock radio. She proudly announced, “It says, ‘N-A-P! That spells nap!’ While I was excited for her that she was able to read this new word, I was also extremely disgusted. Although I’ve had successful experiences with numerous clock radios over the years, this one has me stumped! It doesn’t help that the instructional manual is long gone, probably discarded with the packaging material years ago. After being unsuccessful with various attempts at canceling the nap feature, I finally turned the volume way down and hoped it wouldn’t cause any problems later in the night. About 20 minutes after my daughter went to bed, she suddenly ran upstairs screaming, “My clock is beeping, Mom!” Fortunately, once the feature had been activated, I was able to shut it off, and the word nap no longer appeared on the display. Unfortunately, I learned nothing from the experience that will help me to resolve this issue the next time it happens!

It strikes me that each child in our families and classrooms is somewhat like this clock radio. Not one of them comes with an instructional manual. And while many of us have extensive experience with children (much of it successful), sometimes we feel as though nothing could prepare us for a specific problem or question with which we are currently faced. And often, even after working through that problem or question, we feel as though we don’t know what worked, or why it worked. Many of us may feel like John Wilmot, to whom this quote is attributed: Before I got married I had six theories about bringing up children; now I have six children, and no theories. 

At my house, when I struggle with electronics, I go to the experts for assistance–my sons! Somehow, whether they’re using the remote, VCR or DVD player, digital camera, computer, or microwave, they don’t seem to need the instructional manuals which I’ve misplaced! Similarly, there’s often value in going to others for assistance with life’s difficulties, whether it’s a parenting issue, a classroom problem, or a struggling friendship or other relationship. Sometimes the experiences of others give them unique insight that will help us get “unstuck,” or provide a new way of looking at situations. 

There is tremendous value in recognizing, and even acknowledging to others, that we do not have all the answers. Alexander Pope once said, “A man should never be ashamed to own he has been wrong, which is but saying in other words that he is wiser today than he was yesterday.” At The Gray Center, we believe it’s important to connect with others to share experiences and ideas. We receive daily e-mails from around the world, asking for advice and affirmation, or sharing stories and ideas, as people work to promote social understanding with and on behalf of individuals with autism spectrum disorders (ASD). We hope not only that you will keep writing to us, but that you will continue to network with others so that you can share your expertise, support each other through difficult times, and encourage each other in the valuable work you are doing.

Although there is no “one size fits all” instructional manual for the individuals with whom you live and work, we’ve compiled some great resources to assist you. You can find those at www.thegraycenter.org. Note that many are still on sale as we wrap up our fiscal year and complete our move to our new office. Your tax-deductible donations at this time are particularly appreciated as we work to develop programming at our new location and resume a higher level of staffing (donations can be made safely and quickly online at www.thegraycenter.org).

Best wishes in your continued work of promoting social understanding!  Friends and family can sign up to receive these weekly articles at www.thegraycenter.org.

Laurel Falvo, Certified Family Life Educator

Executive Director, The Gray Center for Social Learning and Understanding

laurel@thegraycenter.org  

P.S. My new “Social Response Pyramid Instructional Kit” is now available, and can be purchased online at www.thegraycenter.org! The kit contains all that you need to begin using the Pyramid at home or in the classroom, including a 55 minute instructional DVD and Pyramid and context pieces.


A Pyramid Week

I’ve often written about my educational tool, “The Social Response Pyramid(TM).” I know that some of you as far away as Australia and the UK have used this tool in your own work and parenting. Until recently, I had primarily used the Pyramid in my presenting and teaching to help parents and professionals better understand how people (including those with autism spectrum disorders, or ASD) process input and respond to it, as well as how various popular teaching strategies (including Social Stories, Social Behavior Mapping, The Incredible 5-Point Scale, and The Planner Guide) can be used to help guide students (and ourselves) toward more socially effective responses.

Last week I promised to tell you more about how my family is working on taking responsibility for our own responses so that we can enjoy our relationships. Several months ago, my family and I decided to commit to using the Pyramid regularly for a week, to see how it worked for us. Many weeks later, we’re still using it regularly! Sometimes my husband or I will tell our kids, “We need to have a Pyramid discussion about this situation.” Other times one of the three kids will suggest it. The results have been very interesting for all of us! We’ve been very pleased (and sometimes surprised) to discover the following:

- The tool works well for all of us, from the seven-year-old to the middle-aged family members (and even reluctant teens have found that it’s beneficial!)

- It’s a tool that’s inexpensive, fast, easy to use, and very effective. It only takes a couple of minutes to have a “Pyramid discussion,” but it almost instantly calms frayed nerves and helps individuals articulate what they were thinking, why they responded the way they did, why their response did or didn’t work, and what different choices they could make in the future. They’re also able to find a way to begin to repair a relationship as they handle a situation which involved conflict. Instead of me telling my kids why they shouldn’t make a certain choice, or what to do about a negative situation, they’re able to come up with that information—and implement it– themselves.

- It’s a whole lot more effective to use the Pyramid to generate socially effective responses than it is to muddle through an interaction using “authentic responses” like yelling, reprimanding, crying, etc. For years I’ve been telling my children to “use their words” when they’re upset or when they want something. This tool gives them an opportunity to do that with terminology that we all understand and can identify with. (It also helps me deal more effectively with their sibling conflicts without getting frustrated or upset).

- It’s been surprising how often we have all the information we need to be socially effective, but our own thoughts, needs, perceptions, or emotions keep us from accessing that information when we respond to others. The Pyramid helps us stop to think through what we’re doing or saying, with the result being that we all get along better!

- We are not the only ones who have noticed a difference in our interactions with each other. Visitors (including the kids’ friends) have asked about the Pyramid pieces lying around or the Pyramid-related comments that we make to each other, and have wanted to learn more about what we’re doing. They quickly begin using the same terminology, and are able to grasp the concepts well in order to participate in our discussions.

Our whole family has been learning a lot, and we’re eager to share the information that we’ve gleaned with all of you! I’ve posted a few video clips of our family Pyramid discussions on YouTube (just do a search on “Laurel Falvo.”) I now have a KIT available for purchase at www.thegraycenter.org, which will give you all that you need to implement the tool as soon as you receive it. The kit contains an instructional DVD (with more information about social effectiveness and several examples of real-life discussions I’ve had with my children, illustrating what can be done with the Pyramid), two laminated contexts, templates for creating your own Pyramid pieces (just cut out, color, and laminate if desired), and an additional instruction sheet.

Last time I presented on The Social Response Pyramid(TM), one person asked, “Is that being done in every school, because it should be!” I informed him that it’s not being done yet because very few people know about it. I’m hoping that as you become more familiar with the tool, you’ll provide feedback that will guide my work in developing new resources related to the Pyramid. Please feel free to email me your suggestions or your stories about how you’re using the Pyramid, or complete and mail the feedback form contained in the Pyramid kit. My goal is that the Pyramid would be a tool that helps all of us interact more effectively with each other, so that we can enjoy all our relationships!

Laurel Falvo, Certified Family Life Educator

Executive Director, The Gray Center for Social Learning and Understanding

laurel@thegraycenter.org

P.S. You can now purchase the Social Response Pyramid KIT on our web site. This brand new resource will be ready to ship by June 30!


Enjoying Relationships

Dinnertime at our house can sometimes be stressful for me. Too often, I don’t plan meals ahead of time, so when the clock and my family’s stomachs indicate that it’s time to eat, I have to go to the cupboard and freezer to figure out what to fix for our family of five. Frequently my kids decide they need my assistance at the same time, either with homework, or addressing sibling conflicts. Although we all sit down together to eat each evening, dinnertime is a busy time for me, as I jump up to grab missing utensils, reach over to cut someone’s food, or respond to a request to pass something. As soon as the meal is finished, it’s time to clean up the kitchen, which further adds to the chaos of mealtime.

Needless to say, I enjoy occasional opportunities to eat dinner at a restaurant. Having someone else fix the meal, serve it, and clean up afterwards enables me to enjoy conversing with my family, and gives me the opportunity to really listen to what they’re saying. Usually we are all a lot calmer at those times.

Relationships are like that, I think. The more we have to be involved in the busyness of managing a relationship, the less we’re able to just enjoy it. When a family member, student, colleague, or friend needs frequent correction for the choices he or she is making and the impact that they have on others, it’s difficult to sit back and enjoy that relationship. The result may be that the two people in the interaction, whether it’s a parent and child, or student and teacher, or employee and boss, feel stressed by their relationship, and may even feel as though they don’t like each other (or aren’t liked by the other person).

The more we can manage our responses on our own, working at being socially effective, the more other people can simply enjoy being our friend, teacher, colleague, student, or parent.

At our house, we’re making changes to enable all of us to enjoy each other more. We’re working to decrease mealtime stress through designating helpers and instituting better table manners (for example, my husband insists that everyone wait to eat until I’ve had my first bite, which helps to ensure that others are not half finished by the time the food preparation is done and I get to sit down to eat). Our children are also helping more with cooking—a skill which benefits them as much as it does me! We’re each working at taking responsibility for our own socially effective responses, so that we can enjoy our relationships instead of having to correct each other or deal with added stress. I’ll write more about that next week!

Do you have favorite “stress-busters?” Do you have suggestions for table manners or other tips which you’d like to share with our readers? Please email your ideas to me or post them here, and I’ll work at compiling them for our 8300 SUN News readers in the near future.

Best wishes as you work to promote social understanding and social effectiveness, and as you enjoy your relationships!

Laurel Falvo, Executive Director

The Gray Center for Social Learning and Understanding

www.thegraycenter.org

 

P.S. For those of you who have a June 30th fiscal year end like we do (and for all of you), we’ve extended our 10% savings using coupon code DUCK09 through June 30. Create your own sale on resources related to sensory integration, bullying, Asperger Syndrome, adolescence, teaching, hygiene, Social Stories(TM), and more! This special will not be advertised on our web site, but will be available to all of our SUN News members through the end of the month. Thank you for helping us to promote social understanding for the past 10 years!


Adolescence

I officially became the mother of an adolescent almost two years ago when my oldest son turned 13. I was surprised to find—even though I knew a lot about the changes that take place in adolescence—that many things changed very drastically as my son entered that stage of life! Suddenly it seemed that everything I knew about him (his preferences, his way of interacting with other people—and with me—etc.) had changed seemingly overnight. This was accompanied by a wide variety of physical changes, one of which left me literally looking up to him each time we interact. Although my other son has not yet officially hit adolescence, he’s in the stage that is recognized as “early adolescence” or “preteen.” I had to laugh recently when the middle school teachers sent home a flyer about preteens and the primary characteristics of this age group. In reading it, I was tempted to think that they had written it just for me, describing my son very accurately! It re-opened my eyes to the fact that many of the struggles I have as a mom are not unique to my relationship with my son, but are common to the relationship between any parent (or professional) and preteen or adolescent!

 

What are some of the characteristics of the early adolescent years? Many are also common during puberty and adolescence, but they’re being documented as early as age 10.

 

  1. Physical changes. Growth spurts are a common occurrence during this time. Preteens and adolescents may require more sleep, crave more activity, and eat more to supply their body’s need for fuel. They are also learning to adjust to internal and external changes associated with puberty.
  2. Emotional changes. I’ve heard preteens and adolescents referred to as having a “collage of emotions.” Mood swings are common, as hormones surge and change, and can be as difficult for the individual to understand or tolerate as it is for those living and working with him or her! This age group may be critical of themselves and others, and may intentionally or inadvertently alienate those around them, as well as possibly suffering from the effects of low self-esteem. Those living and working with them will benefit from an abundant supply of patience, flexibility, and understanding.
  3. Social changes. As preteens and adolescents become more aware of peer pressure, they may experiment with a variety of things in order to feel accepted. It’s important that they receive assistance in surrounding themselves with positive friendships and adult guidance and support, even as they are moving toward a desire for greater independence.
  4. Intellectual changes. Their ability to think abstractly is increasing, and they begin to notice more about the world around them and question the way it works. Instructional activities and expectations become increasingly demanding, and generally preteens and adolescents are changing in a way that enables them to handle greater workloads and the skills associated with them. Parents and professionals need to remember that an increase in height won’t necessarily correlate with an increase in social or intellectual ability.

 

No two adolescents are just alike. No book or web site on adolescence, or exposure to past adolescents, will fully prepare us for a particular individual as he or she navigates this stage. Hopefully, we have at least vague memories of our own possibly awkward venture with this period of life, enabling us to be more compassionate and understanding as we walk alongside them, guiding, instructing, and supporting as they move toward adulthood.

 

The presence of an autism spectrum disorder (ASD) can complicate the period of adolescence. We may need to be more intentional in describing the changes to an individual and helping him or her to see that rather than being a frightening or isolating time, these changes are common to most adolescents. We may need to go back to strategies that worked in the past but had perhaps been abandoned for awhile, including Social Articles (similar to Social Stories, but written in more of a “newspaper” format for older or more advanced audiences), visual schedules or strategies, and “natural consequences” (I’ll write more about those in a future issue of the SUN News).

 

The good news is that you are not alone! Whether you are living or working with a preteen or adolescent, or you are a few years behind, looking toward this stage looming in the not-too-distant future, there is much you can do to enhance your own success and that of the individuals with whom you are interacting. The Gray Center has many books and DVDs available to help. At our bookstore (www.thegraycenter.org), you can find resources specifically addressing the needs of girls, boys, adolescents, teachers, parents, and more! You can also join us for our Gray Center conference, “Asperger Syndrome and Adolescence: Building Skills for the Real World,” where psychologist and author Teresa Bolick will introduce the concept of “social capital” as it relates to adolescents with Asperger Syndrome, as well as providing practical strategies that adolescents, parents, and professionals can use to maximize social capital and increase involvement in the real world. We’ll also hear from Talmer Shockley, who was diagnosed a few years ago as an adult with Asperger Syndrome. He’ll be discussing shyness, love-shyness, sexuality, how the diagnosis affects a family, and the difficulties associated with accessing social services. (Register online at www.thegraycenter.org).

 

We can have a more positive attitude about the difficulties associated with adolescence if we remind ourselves of the benefits associated with this period of life. Often, we are able to see glimpses of the adults they are becoming, as we watch them develop new interests and skills, have more “adult conversations” with them, and observe them responding more effectively and compassionately to the needs and interests of others. There are aspects of my sons’ current levels of understanding, interacting, responding, and reflecting that I find very delightful. I certainly continue to learn from them each and every day, and recognize the fact that this stage of my children’s lives, like the ones preceding it, will likely pass all too quickly!

 

Best wishes to all of you who live and work with current or future adolescents. If you have tips, suggestions, or reminiscences you’d like to share, please post those here. We love to hear from you!

 

Laurel Falvo, Executive Director

The Gray Center for Social Learning and Understanding

www.thegraycenter.org

 

P.S. Do you know a business, organization, or individual who would like to advertise in our upcoming conference handouts? We have many affordable advertising opportunities. Go to www.thegraycenter.org for more information. (Deadline for advertisements is March 2).


Stress-Free Holidays?

In many households and classrooms, the holidays are a time of busy schedules, unusual activities and foods, and increased sensory stimuli. For some individuals with autism spectrum disorders (ASD), this is a recipe for discomfort and/or disaster. While some of this cannot be avoided, there are things that parents and teachers can do to help make the holidays more enjoyable—or bearable—for those with ASD. Here are just a few ideas:

Evaluate the Schedule—As a mom and former teacher, I know about the pressure to pack as much in as possible during the last few weeks of the year. Special projects, school programs, making or purchasing gifts, baking special foods, and visiting with friends and family all compete for a place on the calendar. This may happen at the expense of our own perceived sanity, as well as the comfort of our children.
1. Can something be removed from the schedule? This may require saying, “no” to a social engagement, purchasing a gift instead of making it (or the other way around, depending on what is less stressful for you and your family!), or working with friends and family to share baked goods instead of making all of them yourself.
2. Can the individual with ASD be better informed about the schedule? A visual may be helpful for them to anticipate the upcoming activities. This might take the form of a calendar, poster, or “advent calendar” counting down to Christmas or some other special event. (Advent calendars are commercially available. You can also make a paper chain with the correct number of links, having the individual remove a link each day until the special day arrives). For transitions, special events, travels, or a change in schedule, the use of a Social Story(TM) might be helpful (see www.thegraycenter.org for more information).
3. What will stay the same? Often it is comforting for people to know what will NOT be changing during a busy or stressful time. This sometimes helps to keep the changes and transitions in perspective.

Evaluate the Sensory Environment—Most environments (neighborhoods, homes, malls, schools, etc.) take on an increased level of sensory stimuli during the holidays. Lights, music, decorations, and baked or cooked treats all add to the visual, auditory, olfactory, and other sensory input. This can be overwhelming to those who struggle even on a “normal” day to process and make sense of the sensory bombardment.
1. Can something be removed? If there’s lighting, music, or some other stimulus that’s particularly disturbing to the individual, can it be removed or used only at specific, predictable times? My sons never appreciated the motion-activated “talking Santas” and other figures that danced and sang when they walked past. I made sure that we avoided those aisles in the store, or that they were turned off when we visited people who had them.
2. Be sure to provide a quiet, predictable “place away” for those likely to feel overwhelmed by the sensory environment. It should include things that are comforting to the individual—special music, a favorite toy or other item, a comfortable blanket or pillow, etc. You might even be able to work with the individual to set up this special place, and/or to schedule “down times” when it will be used (although if at all possible, it should always be accessible as needed). Some individuals may benefit from having a set of headphones available to use when noise becomes overwhelming to them.
3. Consider whether a “sensory diet” might be helpful for a particular individual. Sometimes heavy lifting (toting a gallon of milk or pulling a wagon), movement activities (jumping or swinging), and other techniques may be helpful. Your local occupational therapist might be able to provide personal suggestions for the individual with whom you live or work. You might also want to consult the resources in the “Sensory Integration” section of our web site at www.thegraycenter.org. (You’ll find that most of those resources are on SALE this week!)

Consider Dietary Factors—Parties and family gatherings provide numerous opportunities to try new, delicious foods. However, this may be upsetting to some individuals, or may create intestinal or behavioral problems for others when they eat unfamiliar foods. Some should be avoiding these treats due to food intolerances, sensitivities, or allergies. It is helpful if teachers communicate with parents about upcoming food parties, so that parents can substitute foods as needed. If attending parties, the individual can eat acceptable or comforting foods ahead of time so they are not as tempted by the foods at the party (or a parent can pack foods to take along—something I did often over the years when my kids were on a gluten-free and casein-free diet).

Other Practical Suggestions—Don’t forget to schedule “down time” for enjoying favorite activities and for sleeping. When we’re tired, we typically have a harder time dealing with sensory and scheduling stressors. It’s also important to factor in physical activity. Walking, jogging, or other forms of exercise or movement are also an important component during the holidays.

What about you? Do you have suggestions for promoting “stress-free holidays?” Whether you’re a parent, grandparent, teacher, administrator, sibling, or individual with ASD (or anyone else), we’d love to hear your creative ideas! You can post those here.

Wishing you all an enjoyable, relatively “stress-free” holiday season!

Laurel Hoekman, Executive Director
The Gray Center for Social Learning and Understanding
www.thegraycenter.org

P.S. For a couple more days, you can still take advantage of our drastic price reductions on resources produced by The Gray Center! Save as much as 50 to 85% on a variety of books and DVDs! Your purchases enable us to continue to provide information and support to those who need it. And as you do your holiday shopping, we hope you’ll take time to register at www.iGive.com/graycenter to have your online purchases benefit The Gray Center—at no additional expense to you! Thank you for your support!


Posted in Parenting, autism

Santa, Easter Bunny, Tooth Fairy…

Although my six-year-old daughter loves school, there is one aspect of school that has caused her great consternation and grief—she is the only student who has not yet lost a tooth! Although her first grade classmates regularly enter their names on the tooth chart posted in the room as their baby teeth fall out, my daughter has had to sit back and watch each time, eagerly awaiting the day when she can also write her name on the chart! She is thrilled to finally have one slightly loose tooth, and asks daily for me to try to pull it out!

My daughter’s interest in losing teeth (and in our family tradition of putting a tooth under the pillow at night for the tooth fairy) brings to mind a SUN News article which I wrote in February of 2007. Since that issue generated a lot of interest and suggestions from readers, I thought I’d reprint it here:

Several months ago I received the following e-mail from one of our SUN members:
“The mother of a student with ASD asked us today about how to handle her son’s anger at having been lied to by his parents about the Tooth Fairy, the Easter Bunny, and Santa. He is a 5th grade student and has been told by a friend that all three are really his parents. He has been quite angry and has called his parents liars and said he is not sure he will be able to trust them again. He has a younger sister who is still a ‘believer.’ We realize that loss is playing a significant role here – this must come up for many, many kids with ASD. Do you have any suggestions for how to help this family handle the transition?”

I’m guessing that many of you can relate to this dilemma! I know that this issue comes up even in families that don’t have a loved one diagnosed with an autism spectrum disorder (ASD)! I used to be a first grade teacher, and I remember the kids in my classroom getting into heated arguments about whether there really IS or ISN’T a Santa or a Tooth Fairy. Movie producers have some fun with this issue by creating movies such as “The Santa Clause” and “The Polar Express,” which inspire our fascination with the subject.

But while many kids grow up with a family tradition which promotes one of these beliefs, only to go through a period of revelation followed by ready acceptance, we know that for individuals with ASD, the loss and apparent deception can cause significant issues. The frustration and anger exhibited by this particular student is understandable!

So what are we to do? I would be as honest as possible with this student. Explain that these are “traditions” that are passed on from adults to children, from generation to generation. Often, when children grow up and become adults, they decide to pass the tradition along to their children by telling and acting out the stories of those traditions. Now that he knows that it is simply a tradition rather than reality, he can help to pass the tradition on to his younger sister. There may be ways for him to be involved in that! (When I was a child, I helped put cookies on the mantle for Santa, knowing that my dad and our dog would enjoy a midnight snack, but still enjoying the “game”–especially for the benefit of my little sister). He might be able to do some research on those traditions (Wikipedia would be a great place to start, at http://en.wikipedia.org/wiki/Tooth_fairy), or help his parents or teacher write a report to describe a particular tradition and how and why it’s celebrated. Like a detective, he may want to help look for “clues” that show that it’s simply a tradition (i.e. each mall has a Santa—one person can’t be at each mall at the same time!)

Depending on how seriously he is taking this, his parents might also owe him an apology, explaining that they had not viewed it as deception, but as the passing on of a tradition, but that they can see how it would feel that way to him. It’s important to validate his feelings, too!

The teacher is correct that this is also a loss-related issue. For more help on that (particularly if the previous suggestions didn’t help!), readers might want to check out Carol Gray’s “Gray’s Guide to Loss” here: http://www.thegraycenter.org/store/index.cfm?fuseaction=product.display&product_id=68.

I’d like to close with a quote from the Wikipedia site I noted above:

“The Tooth Fairy is an example of folklore mythology sometimes presented to children as fact…The realization or discovery that such stories are make-believe is considered a part of the child’s growing up…Many families participate in the roles of this myth even when the children are also aware of the fictionality…as a form of play or tradition.”

If you were considering writing a Social Story™ or Social Article™ to help explain this issue, that’s a great place to look for ideas to get you started! (Other suggestions for using this valuable technique developed by Carol Gray can be found on our web site at www.thegraycenter.org).

Best wishes, and thank you for the work you are doing to promote social understanding! If you have your own suggestions for dealing with this issue, please post them here.

Laurel Hoekman, Executive Director
The Gray Center for Social Learning and Understanding
www.thegraycenter.org

P.S. In honor of the children who ask good questions seeking helpful information, and just in time for holiday gift-giving, we’re offering a SALE on all of our children’s resources (books, DVDs, and CDs) at www.thegraycenter.org! (Some of these resources are for children, some for adolescents, and others for the parents and professionals who work with them). You can even save on Michelle Garcia Winner’s newest book, “You are a Social Detective!” Hurry—sale runs only through the end of the week!


Preparing to Fly

When I was a child, my house had a front light post that closely resembled a bird cage. Apparently the neighborhood birds agreed, since every spring, we would watch a mother robin build or remodel an existing nest in the wrought iron structure. Soon we would see glimpses of two to four delicate bright blue eggs. Eventually, under the watchful eye and patient tending of the mother, they hatched into helpless little beaks opening wide to the expanse above, eagerly awaiting the dinner they knew their mother would soon provide. As the baby birds gained strength, it was obvious that they would soon be moving out of the nest and venturing out on their own. One day, the mother would begin encouraging each little one to test its wings and fly. Before long, after a bit of practice, and following the mother’s lead, the little ones were led across the road before flying off in separate directions to begin their new life.

 

One year, as the baby birds were venturing farther from the nest, it became obvious that their mother had not returned from her recent travels. The baby robins appeared disoriented as they wandered around in the road. As my family and I watched, a very surprising thing happened! A sparrow flew down, and patiently guided the fledglings across the road!

 

I am able to see some similarities between a devoted mother bird and the way that I am parenting my own children. From the day my children were born, I have been aware that I am raising them to eventually head out on their own. In addition to protecting them, my role as their parent is to give them “wings,” and prepare them to “fly!” As I navigate daily life with them, I try to view each situation we encounter in light of the bigger picture, asking myself, “What lesson can this teach them that will help as they become more independent?” And also, “What is the core skill or strategy that they need to learn here in order to be successful?” I have often focused on basic but important concepts such as identifying and participating in healthy relationships, asking for help, coping constructively with stress, taking turns, apologizing, planning, prioritizing, and respecting others. I’m trying to give them tools that will help them manage finances responsibly, complete tasks in a timely manner (and ensure that they are well-done), find resources to aid in problem-solving, and build strong relationships with others. Although it is tempting to shelter them or keep them close to me, I am able to continue to encourage them to spread their wings by focusing on my desire that they will be able to function as successfully as possible as adults.

 

Admittedly, my own abilities, experience, and available time are not always adequate for the task at hand. I am thankful for the “sparrows” who gently help to guide my children. We can count a long list of teachers, friends, family members, counselors, and neighbors who have stepped in along the way to provide valuable guidance and practical assistance. We are learning to look for those individuals in our lives, to express gratitude to them, and to anticipate that there will always be such people to turn to as needs change on this road we’re traveling. (This is the concept of “interdependence,” about which I wrote a few weeks ago.)

 

Whether you are a parent, a professional, or a person on the autism spectrum, you can also be a “sparrow,” guiding and assisting others along the road toward success! Sometimes it’s as simple as looking for those who are floundering, seemingly lost or unsure of the direction they should be heading. Often our patient, supportive presence can be enough to move them along to the next step of their journey!

 

Laurel Hoekman, Executive Director

The Gray Center for Social Learning and Understanding

www.thegraycenter.org

 

P.S. We have numerous books, CDs and DVDs available in our bookstore at www.thegraycenter.org  which can provide helpful strategies and information for parents, professionals, siblings, people with ASD, and friends who are working to promote social understanding. One way of providing practical support for others is to give them a copy of the booklet, “ASD to Z.” Newly revised, this resource provides basic information, support, and hope for those dealing with an autism spectrum disorder, serving as a starting point for those new to the diagnosis. This week you can purchase copies of this resource for only $2 each! We hope this booklet will give you a specific opportunity to be a “helpful sparrow” to someone in your life!


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