Gray Center SUN News

Proactive Parents

Welcome to a special edition of the SUN News–a weekly update for The Gray Center Social Understanding Network! I’m writing this in response to the many requests I get for support for parents—note that at the end of this article, there’s information about an upcoming parent meeting in Zeeland, MI.

My husband and I try to be proactive parents! Although our children sometimes complain, they would tell you that they do not dislike us for it; in fact, during moments of honest reflection, they would likely tell you that it has earned us their respect.

What is a proactive parent?

A proactive parent wants what’s best for her children, but recognizes that sometimes they have to earn it, go without it, or lose it before they also value it.

A proactive parent allows his children to sometimes falter, fail, and fall, knowing that failure will teach them more about succeeding than his constant rescues ever could.

A proactive parent clearly spells out reasonable but high expectations, and holds firm (without giving in or back-tracking) until her children achieve them. Her children learn that their own good choices generally lead to good consequences, and their bad choices often lead to unpleasant consequences, because she consistently allows them to experience this. Although they like to blame their proactive parent for the consequences that they dislike (and all too infrequently thank her for the good ones), they eventually learn that they can receive more frequent rewards by making more good choices—and they try to take responsibility for their bad choices.

A proactive parent is gentle but firm, flexible yet consistent, empathetic but unwavering. He recognizes and respects where his rights and responsibilities end and where his children’s begin…and through his expectations and responses, teaches his children to do the same.

A proactive parent is willing to forgo present thanks and pleasure for future rewards. She recognizes that today’s trials lead to tomorrow’s triumphs, both for herself and her children.

A proactive parent knows that his children’s verbal, emotional, and physical resistance to his “no” will eventually go away when they’re ready to move on to the next request. And then he will feel stronger for holding firm, and his children, like steel refined by fire, or a tree strengthened by the wind, will also be stronger.

Proactive parents know that neither they nor their children are perfect, and while their standards are high, through unconditional love and acceptance, they create a physically and emotionally safe environment in which their children can experience both failure and success.

They may sometimes doubt their effectiveness as parents, feel guilty for being “tough” on their children, dislike the children’s sometimes hurtful responses, feel isolated and alone, and grow weary from adhering to high standards. Yet they believe that “tough love,” although it isn’t always “warm and fuzzy love,” builds character and enables people to interact more effectively with others.

Thankfully, most proactive parents catch glimpses of greatness as they go about the work of parenting. Just as she might enjoy a gleaming floor after spending hours on her hands and knees scrubbing and polishing, or catching her reflection in a window that she has worked hard to clean, a proactive parent begins to see that her efforts are reaping rewards. As his children exhibit honesty, kindness, respect, responsibility, integrity, good work ethics, forgiveness, and flexibility, he sees that they, too, are on their way toward being proactive parents —or teachers, therapists, and friends–who hold themselves and others accountable while also being kind and supportive.

Are you a “proactive parent?” Do you wish you could be? I think we need to be more deliberate in supporting parents, teachers, counselors, and others in their work of promoting social effectiveness through the types of expectations and natural consequences that I detailed in this article. In fact, I am not able to be a proactive parent alone! My husband is a huge support as he patiently provides love, encouragement, and instruction to our children and to me. We work with our children’s teachers to ensure that we all have similar expectations both at home and at school, as we teach responsibility and hold our children accountable. Grandparents and other family members, friends, and neighbors also help in the important task of raising our kids to be kind, responsible, and productive individuals. This type of teamwork is what is intended by the common saying, “It takes a village!”

Kids provide daily opportunities for us to learn to be proactive parents, including throwing a tantrum if they don’t get what they want, refusing to do their chores, asking for more money (after wasting their own), making hurtful comments,  and stressing our resolve through whining, asking incessantly, sulking, or making threats. Children around the world provide these fabulous learning opportunities for the people tasked with caring for and instructing them. The question is, what will they learn from it? What can we do to equip them with the necessary skills for being effective participants in their relationships, whether it’s with us, or with others?

I hope you’ll take a minute to respond to this article here, or on our Facebook or Twitter accounts. There’s no need for anyone to feel alone or to face difficult decisions—and stand firm in adhering to what they know is best—without the support of others around the world!

From one parent attempting to be proactive, to many others,

Laurel Falvo, CFLE

Certified Family Life Educator

Executive Director, The Gray Center for Social Learning and Understanding

www.thegraycenter.org

If you live in West Michigan, I hope you’ll join me on Tuesday, Nov. 10 from 7:00-8:30 p.m. at The Gray Center, City on a Hill Ministries, 100 Pine St., Zeeland, MI, for a “proactive parent” meeting. This will be an opportunity to support each other while learning more about the challenges proactive parents face, and creative strategies for addressing those challenges as we work toward interacting more effectively with our families. ALL parents are invited, regardless of the age of your child, or the presence of (or lack of) a particular diagnosis. Please RSVP by selecting the “proactive parent” option in our shopping cart at www.thegraycenter.org.


Characteristics of Autism: Sensory Integration

Welcome to The SUN News–a weekly update for The Gray Center Social Understanding Network!

There are a variety of factors that lead to a diagnosis of an autism spectrum disorder (ASD) when they occur together. In the last couple of weeks, The SUN News has looked at language and communication differences, and behaviors/interests/imagination. This week, we’re looking at the category of sensory integration. This is not part of the “triad of symptoms” originally described by Lorna Wing, but is becoming an increasingly accepted and anticipated facet of ASD. These SUN News articles do not attempt to fully detail the differences present with a diagnosis of autism, but will explain the implications of each area as they relate to interactions with people with ASD.

When a person’s sensory system is not well-integrated, he or she may:

- Have difficulty screening out unnecessary noises, struggle to focus on the important ones, and may sense some sounds as unusually painful

- Have difficulty paying attention to important details without being distracted by tags in clothing, temperature, or other sensory input

- Be intolerant of different textures when eating or touching things

- Slam doors or use too much force in other areas, since the proprioceptive system is not signaling how heavy the door is and how much force is needed

- Walk into things or step on people’s toes, due to a lack of understanding of where his/her body is in space

- Be bothered by too much visual input—fluorescent lighting, too many objects or colors, too much activity or motion

- Stand too close while talking with someone, or complain that someone else is too close, since he/she lacks an awareness of appropriate personal space

- Use a voice that is too loud or too soft for the current social context

- Shut down or melt down, when the sensory system becomes over-stressed

You may or may not have a well-integrated sensory system. But either way, it’s likely that you have developed strategies over the years to keep your system functioning more efficiently and to help yourself stay comfortable. Some people chew gum or drink coffee to stay alert. Some cross their legs while sitting and bounce their foot, or tap their pencil on a desk for additional input or to calm themselves. Some wear gloves when gardening because they don’t like getting their hands dirty, or while cleaning because they don’t like to get their hands wet or dislike the lingering smell of cleaning solution which might remain on their hands.

When we’re working with children, we have a tendency to remove such options which might improve their functioning or help them stay more comfortable. Often we do not allow chewing gum in class, we do not provide gloves for finger-painting, and we tell students to sit still while they’re completing their assignments. Then we’re surprised or frustrated when they have difficulty participating in the activity successfully. Occupational therapists have made great strides in introducing “sensory diets” in classrooms to provide the feedback so many students need, whether swinging, pushing or pulling heavy objects, “brushing” (the Wilbarger method), weighted vests, bouncy seats or balls to sit on while working, etc.

It may be helpful to ask someone with sensory integration dysfunction which sounds, smells, and other sensations are most disturbing to them. You may be able to change the environment to be more conducive to their needs, or provide strategies which would help them be more successful in spite of their challenges.

Books such as “Answers to Questions Teachers Ask About Sensory Integration” and “Understanding Regulation Disorders in Sensory Processing in Children” can be helpful if you’d like more information about this topic. Both are available at www.thegraycenter.org.

Thank you for the work you are doing to promote social understanding and effectiveness with those with ASD

Laurel Falvo, CFLE

Certified Family Life Educator

Executive Director, The Gray Center for Social Learning and Understanding

www.thegraycenter.org

P.S. Would you like to continue to receive The SUN News every week? Would you like updates on new resources and sales at The Gray Center, and/or would you like to be notified when The Gray Center hosts events and network meetings? Be sure to subscribe at http://eepurl.com/ekqF (where you can choose the updates you prefer to receive) since we’ll soon discontinue use of this current SUN News subscription feature and individual email updates sent by staff!


Characteristics of Autism: Imagination, Interests, and Behaviors

There are a variety of factors that lead to a diagnosis of an autism spectrum disorder (ASD) when they occur together. Last week, The SUN News looked at language and communication differences. This week, we’re looking at the category often described as imagination, restricted interests, or behaviors. This is not an attempt to fully detail the differences present with a diagnosis of autism, but to further explain the implications of each area as it relates to interactions with people with ASD.

Many people associate autism with stereotypical behaviors, such as hand-flapping, rocking, or flicking fingers in front of the face. These behaviors are sometimes referred to as “stimming”—an often involuntary response of the individual with ASD to excitement or over-stimulation. For some, these responses fill a need; perhaps calming or reassuring them during times of stress or excitement, or providing additional stimulation when needed. Some individuals with ASD are aware of these responses, and have learned over time (or are learning) to replace them with a response that’s less likely to draw attention to themselves, perhaps holding a “fidget” (or small squeezable or otherwise responsive toy or object), or by sitting on their hands when they’re around other people and sensing a need flap their hands. Since these are generally “authentic responses,” the individuals may not always be aware of them, and may not be able to anticipate or control them. Other people can help by being understanding and accommodating, by helping them to find a time and place to engage in these responses, or helping to find replacement responses as appropriate.

Many people note differences in imagination abilities in people with ASD. It’s not that they don’t have an imagination; rather, they may engage in more realistic imaginative play, or exhibit imaginative abilities within the realm of their special interests, or somehow be more restricted in their imagination. Where this becomes an issue in social interactions is when we recognize that we spend much of our daily lives engaging our imaginations. We imagine what another person’s response might be if we tell a particular joke or a favorite story, we imagine what might happen if we turn in an assignment a day late, or if we’re unable to find our car keys. Many of our responses have first passed an internal “imagination test,” where, through theory of mind (or the ability to imagine what another person knows, thinks, feels, etc.) or other developmental strategies we’ve imagined our own response and how others might respond to it before we do or say something. People with ASD are often missing valuable, relevant social information about themselves and others, and can be helped through Social Stories, Social Behavior Mapping, The Incredible 5-Point Scale, The Hidden Curriculum, The Social Response Pyramid, and many other tools or strategies.

Another aspect of a diagnosis of ASD is “restricted interests.” Often people with ASD have a special interest that is unusual in its focus and intensity. It may be similar to the interests of one’s peers, or vastly different. But this interest (sometimes referred to as a “perseveration”) typically occupies the time, conversations, physical space, and emotional energies of the person with ASD. Although this aspect can make it difficult for parents and professionals to gain the attention of the person who would rather be talking or thinking about an area of special interest, it can also be used for motivation, rewards, and possibly even for a career path. This has been the case for Temple Grandin, author of “The Way I See It” and “Developing Talents,” who has used her love for animals and her incredible ability to think in pictures to become very successful in designing humane livestock handling facilities! Often the rest of us have much to learn from the dedication, loyalty, and significant knowledge that a person with ASD may have acquired about a particular topic.

Lastly, people with ASD are known to adhere to routines and rituals. However, when a person lives in a world full of events and responses that appear random, as is often the case for those with ASD due to their difficulties with generalizing, executive functioning, theory of mind, gestalt processing, sensory integration, etc., it makes sense that they would grasp onto those things in life that are routine, predictable, and comfortable. Schedules, routines, calendars, and clocks can all provide predictability and valuable reassurance for those who struggle to make sense of an otherwise seemingly chaotic environment. We can help by providing advanced notice when things are going to change, using visuals to help guide them through transitions, providing calming strategies, and by recognizing when it might be better to ensure that a comfortable routine can be followed, at least for a time.

Each of the resources mentioned above, along with many others, can be found at www.thegraycenter.org. Thank you for the work you are doing to promote social understanding and social effectiveness!

Laurel Falvo, CFLE

Certified Family Life Educator

Executive Director, The Gray Center for Social Learning and Understanding

www.thegraycenter.org

P.S. West Michigan Young Adult Networks: The Grand Rapids group meets Tuesday, October 20 from 7:30-8:30 (go to www.thegraycenter.org for details on the NEW location). Parents meet at the same time. New Lakeshore Young Adult Network meets Tuesday, November 3 from 7:00-8:00 p.m. at The Gray Center’s new office in Zeeland. Hope to see you there!


Charcteristics of Autism: Language

Welcome to SUN News–a weekly update for The Gray Center Social Understanding Network!

There are a variety of factors that lead to a diagnosis of an autism spectrum disorder (ASD) when they occur together. For the next few weeks, The SUN News will cover each of those, not in an attempt to fully describe them, but to further explain the implications of each area as it relates to interactions with people with ASD.

One characteristic of ASD is the presence of delays or deviations in language and communication. Both expressive and receptive language may be affected, although typically expressive language is a strength for those diagnosed with Asperger Syndrome. These individuals may sound like “little professors,” even at a very young age, and particularly if they are talking about an area of special interest. However, understanding language (what they read or hear), answering questions, and using language socially are typically more of a challenge for them. “Small talk” can be difficult for those with ASD, both because of the fast pace and back-and-forth nature of it, as well as the mundane topics such as weather, jobs, family members, etc.

So much of our daily communication takes place outside of the actual words that are spoken or written. Instead, meaning is derived from context, tone of voice, body language, and facial expressions. People with ASD naturally gravitate toward the actual words, and often miss the intended meaning because they have difficulty “reading” the other factors (noticing them, understanding their significance, and responding effectively).

Some individuals with ASD do not use verbal language to communicate, or have very limited words or signs to indicate their needs or thoughts. My friend Sondra Williams, a woman with high-functioning autism, has shared that she was “non-verbal” or had very limited verbal ability until about the age of five. As an adult, she is re-examining the memories she has of her childhood, and is finally beginning to put words to the thoughts and feelings she was experiencing at that time. In other words, although she couldn’t begin to process those things when she was young, she is now able to comprehend what was happening, and how she felt about it. Her phenomenal ability to share her experiences with the rest of us has been captured in her writing and poetry in the book, “Reflections of Self,” and her DVD, “Define Me,” both available at www.thegraycenter.org. Sondra and others have provided a vivid reminder to me that even when someone does not use verbal communication, they may have a wealth of ideas to share with the rest of us. I’m thankful that assisted communication, sign language, and other methods are helping some individuals with ASD to connect with others in a way that had been previously unavailable to them.

Basically, simple language tends to be more of a strength for individuals with ASD than complex language. When we “say what we mean and mean what we say,” we are communicating in a way that is more likely to be understood by those with ASD. We can also help by “using our words” to explain our thought process, and to clue them into the facial expressions, body language, and context clues that contribute to intended meaning as they participate in social interactions with others. Using visual cues, and providing plenty of “think time” as they retrieve information stored in their memory can help those with ASD be more successful in their interactions with others.

More information and strategies can be found in resources by authors such as Linda Hodgdon, Carol Gray, Tony Attwood, Michelle Winner, Diane Twachtman-Cullen, and also Catherine Snodgrass, who has written a delightful book, “Super Silly Sayings that Are Over Your Head,” which depicts idioms in a fun and engaging way. All of these resources—and many more—can be found at www.thegraycenter.org.

It’s important to remember that each individual with ASD is more than the sum of their diagnostic differences. Each will also be characterized by a unique personality, interests, abilities, and more. As we celebrate the uniqueness of each person, we can also be better equipped to understand their differences and respond in a way that will help all of us to be more successful in our interactions with one another!

Laurel Falvo, CFLE

Certified Family Life Educator

Executive Director, The Gray Center

www.thegraycenter.org

P.S. Our featured resource this week is “Simple Strategies that Work.” It’s an easy-to-read and easy-to-implement resource which contains great information for working with individuals with ASD and related disabilities. We’ve recently added this title and several others—find each one in the “new titles” category at www.thegraycenter.org!


Posted in autism

Autism Statistics

My inbox was flooded today with reports that new statistics indicate that one in every 91 American children are now being diagnosed with autism spectrum disorders (ASD), up from the previously held statistic of one in 150. Yesterday I was asked by a friend, “Can adults have Asperger Syndrome?” As many of you know, the answer is a resounding “YES!” (although apparently they are not counted in the current statistics, nor are the many children who are misdiagnosed or as yet undiagnosed). Children with ASD grow into adults with ASD, although hopefully with lots of help along the way, they are able to move up the spectrum as they grow and develop. They may perhaps “recover” from the diagnosis by functioning like their peers without the diagnosis being a hindrance to their ability to be successful socially. I’ve written about these topics in the past, but thought today would be a good time to focus again more specifically on the diagnosis and what it means to those of us who are working to promote social understanding around the world.

Already years ago I was interviewed by the local media who were putting together a piece on the “appalling increase” in the prevalence of ASD. Personally, I prefer to leave the research and statistics to those who are dedicating their careers to uncovering the cause of autism (or various types of autism corresponding to a variety of causes, which is the current direction of research). Instead, my work focuses on figuring out what to do for those who have ASD, and the many other people in their lives who are impacted by the diagnosis. Rather than throwing our hands in the air in amazement and discouragement, I prefer to simply recognize that every one of us, whether we know it or not, is interacting with people with ASD as we go about our daily lives. And once we acknowledge that, we can further educate ourselves regarding what to look for, and how to enable everyone to experience social success—even those with ASD.

Next week I’ll detail some of the diagnostic criteria for ASD, and describe how it looks in real-life situations. As you ponder the definitions and statistics in the weeks ahead, I hope you’ll keep the following points in mind:

1. Each individual with ASD is first and foremost a person! I am frequently saddened and disappointed when sensational news about the horror of autism overlooks the people who have been labeled with this diagnosis—and who are so very much more than the sum of autistic symptoms! Each one has a personality, strengths, dreams, interests, fears, and challenges, just as we all do. I doubt that any one of us would want to be known by a single solitary label, anymore than a person with ASD could be correctly described or summarized only by the word autism.

2. Autism is often referred to as a “social disability” because the characteristics of ASD have a significant negative impact on a person’s ability to be successful socially. However, not one of us is capable of being social all alone! The definition of social requires two or more people in an interaction. And each of us bears the responsibility for the success of the interaction. I’ve frequently written about social understanding in terms of a teeter-totter. When a lightweight person is sitting on a teeter-totter opposite a heavier person, who bears the blame for the lack of success as they are unable to go up and down and enjoy the activity? I guess it’s all a matter of perspective. Do social interactions break down because one person has autism, or because the other person is unwilling to see things from another’s perspective, to be flexible, to provide additional instruction, and to accept the other’s differences?

The new statistics will be used in the upcoming weeks to generate further funding for research, which may continue to help us better understand the diagnosis and those who are affected by it. However, I hope that the statistics will spur the 8400 people around the world who are reading this article today toward renewed dedication to working toward social effectiveness; providing missing information, helping to connect the dots, appreciating the strengths, and working to meet the various needs of those we interact with each day.

The Gray Center is here to help you do that! At www.thegraycenter.org you can find information about ASD, valuable resources to assist you in your teaching, parenting, and understanding the social world, social coaching, consulting, and more. You can stay in touch with us via Facebook and Twitter, and access our Community Network and topic blogs through our home page.

I hope you’ll take a moment today to reach out to someone with ASD to let him or her know how much you value all that they bring to your life. And lend a helping hand to another parent, teacher, employer, therapist, administrator, etc. who is working to promote social effectiveness in their part of the world. The statistics remind us that every one of us is crucial to the important task of promoting social understanding so that everyone can experience the rewards of being socially successful.

Best wishes in your work around the world!

Laurel Falvo, CFLE

Certified Family Life Educator

Executive Director, The Gray Center for Social Learning and Understanding

www.thegraycenter.org

P.S. Your tax-deductible donations enable The Gray Center to continue to provide information and support for those affected by ASD. You can give safely and quickly online at www.thegraycenter.org. Thank you for your financial support!