Gray Center SUN News

Why They Do What They Do

Welcome to SUN News–a weekly update for The Gray Center Social Understanding Network! Today’s article is Part Two of a series begun last week, which was originally written in 2007.

Last week my SUN News article detailed three steps to promoting social understanding. Step one focused on understanding ourselves, and making sure that we “make sense” to those around us. Step two focused on understanding others. This may be a difficult step for those of you living and working with individuals with autism spectrum disorders (ASD)!

Frequently in past issues of the SUN News I’ve quoted from my Page-A-Day calendar. Here is another quote I encountered this past spring while using that resource: “Try to understand why people do what they do. They have their reasons even if we don’t know what they are.”

Have you ever thought about that with respect to individuals with ASD? We are quick to view their comments, silences, meltdowns, and actions as meaningless, unanticipated, inappropriate, or even defiant. Yet I believe that if or when they are able to process and to voice explanations for their actions, they usually have very valid reasons for them!

What then causes them to do what they do? Here are some possible explanations:

1. Sensory processing. Each of us is constantly bombarded by sensory information. What our brains do with that information can vary widely, and can produce just as wide a variety of responses! But frequently those responses are perfectly valid given the way that our brains processed the input. Do you perceive a noise as painful? It makes sense that you would cover your ears, run from the noise, or try to drown it out in another manner. Are you adverse to certain sensations? Then it seems appropriate that you would avoid getting your hands dirty (and any tasks that would lead in that direction), or refuse to wear particular clothing, or react abruptly (or even forcefully) to distasteful touch. These responses make even more sense when paired with some of the following explanations.

2. Being motivated by special interests. Individuals with ASD typically have an area (or areas) of intense interest, to the exclusion of others. They may ignore or refuse other topics or activities, not to be rude or disobedient, but because they are more interested in –or feel compelled to follow–opportunities to pursue or engage in their special interest.

3. Inability to glean from external assistance. The nature of their diagnosis makes it difficult for individuals with ASD to learn from past experience, to establish a connection between rewards, consequences, and their behavior, or to ask for help from others.

4. Misinterpretation of language or the social environment. ASD often causes individuals to interpret things literally, to miss intended meanings, to overlook or misunderstand social expectations, and to incorrectly process what they hear (auditory processing), see, or experience. Their lack of information or experience may also make it difficult for them to anticipate how others will respond, or to communicate how they are feeling or what they are thinking.

5. Unique personality traits and characteristics of their age and maturity level. Sometimes people “do what they do” because they are young and inexperienced, or because their personality dictates that they are more extroverted or introverted. Many years ago Carol Gray wrote an excellent article entitled, “Honey, I Shrunk the Syndrome.” It was a great reminder that many of the behaviors that we observe in individuals with ASD cannot–and should not–be attributed to their diagnosis. Sometimes they may make an inappropriate choice, or an immature decision, or take an uncalculated risk, just because they’re human. Let’s face it–haven’t we all “been there, done that” many times over?

If we keep an open mind, and make a true effort to understand why those around us do what they do, we will make great strides in our efforts at promoting social understanding. My quoted calendar entry ended with these words, “When we try to understand why people do what they do, we have more compassion.” What a great goal–to become more compassionate parents, teachers, administrators, therapists, doctors, neighbors, and friends through our efforts to better understand ourselves and others!

Laurel Falvo, Certified Family Life Educator

Executive Director, The Gray Center for Social Learning and Understanding

www.thegraycenter.org

P.S. Would you like to learn more about people with ASD and the factors that contribute to their responses to us and others in their social context? The Gray Center has a variety of resources available at www.thegraycenter.org. I also travel around the country giving presentations and trainings to parents, teachers, and conference attendees. If you’d like to hire me to train your district, parent group, etc., email me at laurel@thegraycenter.org.


Social Understanding: No One Size Fits All

Social skills often masquerade as a “one size fits all” panacea for which we can develop and enforce a list of rules and regulations. But like a T-shirt that hangs on one person’s frame or stretches to cover another, an approach based on listing and teaching “social skills” is likely to fall short of the social needs of individuals.

A social skills approach may be eager to instruct students to “make eye contact” with others. But if students lack the social understanding to use eye contact effectively, they will miss important social cues about the thoughts, feelings, and intent of others. They may convey rudeness to those with whom they are interacting if they appear to be staring, or if they fail to avert their eyes when it would be socially appropriate to do so.

Social skills training may teach an individual that it is socially acceptable to give compliments to others. Yet if social understanding is not encouraged, this individual may give the same compliment to everyone he or she meets, not taking into account the appropriateness of the occasion, the compliment, or the audience.

Many teachers and parents identify a need to teach students how to approach others to play on the playground or be included in a classroom activity. Looking for an easy-to-implement process, they hope to provide a recipe for these individuals to walk up to a group, say the magic words to join in with the others, and enjoy a successful and productive interaction. Yet if peers are not prepared for possible awkward attempts at interacting, or if an individual with ASD does not grasp (or agree with) the value of interacting with others, whatever “magic words” are spoken are not likely to produce the desired effect. Instead, repeated failure convinces the individual that attempting to join others is not worthwhile, and reinforces negative expectations of his or her peers.

How then do we teach social understanding? Many experts have tackled this subject very successfully. Notable authors include Carol Gray, Michelle Garcia Winner, Brenda Smith Myles, Kari Dunn Buron, and Catherine Faherty, just to name a few! Although there are many helpful techniques and approaches, I believe there are some very basic premises which should always be applied:

1. Evaluate and re-evaluate how and why we do what we do. (Does it make sense? Is there a better way? Do others perceive this the same way we do, or are there other interpretations?) Social understanding starts with understanding ourselves and being open to productive and creative change when necessary!

2. Work to understand the individuals with whom we live, study, and work. When an autism spectrum disorder (ASD) is part of the equation, it is important to have a working knowledge of the differences and delays involved, as well as potential strengths. But it is even more crucial to know the individual–personality, likes, dislikes, manner of engaging with the world, current understanding of various aspects of life, etc. (This topic will be further addressed in next Monday’s issue of SUN News!)

3. Work to help others understand themselves and the world around them. Again, when ASD is involved, we can help these individuals understand how they process information, how they may view life differently than others, and how they can set and reach goals in spite of–or because of–their diagnosis. (Notable resources include books by Beverly Bishop, Catherine Faherty, Ellen Heller Korin, and Yoko Yoshida.) If we have been successful with Step One, we can also help others understand how and why we do what we do.

An emphasis on “social understanding” instead of “social skills” helps to ensure that we are all more genuinely involved in others’ lives, and not just “going through the motions.” I believe it also presents increased opportunities for success and happiness, as well as better relationships, for all who are truly committed to promoting social understanding.

Best wishes as YOU work to promote social understanding in your corner of the world! If you’d like to share your own ideas or experiences regarding this topic, you may do so here!

Laurel Falvo, Certified Family Life Educator

Executive Director, The Gray Center for Social Learning and Understanding

www.thegraycenter.org

P.S. The Gray Center offers a variety of resources by the authors mentioned above, and much more! Check out the selection at www.thegraycenter.org. Your purchases help The Gray Center provide information and support to people around the world. Thank you for partnering with us in this way!


Santa, Tooth Fairy, Easter Bunny, and Other Traditions

Welcome to the SUN News–a weekly update for The Gray Center Social Understanding Network! I originally wrote this article in 2007, and have now posted it to our topic blog at http://thegraycenter.blogspot.com/. I hope you’ll add your own ideas and information there!
Several months ago I received the following e-mail from one of our SUN members:

“The mother of a student with ASD asked us today about how to handle her son’s anger at having been lied to by his parents about the Tooth Fairy, the Easter Bunny, and Santa. He is a 5th grade student and has been told by a friend that all three are really his parents. He has been quite angry and has called his parents liars and said he is not sure he will be able to trust them again. He has a younger sister who is still a ‘believer.’ We realize that loss is playing a significant role here – this must come up for many, many kids with ASD. Do you have any suggestions for how to help this family handle the transition?”

I’m guessing that many of you can relate to this dilemma! I know that this issue comes up even in families that don’t have a loved one diagnosed with an autism spectrum disorder (ASD)! I used to be a first grade teacher, and I remember the kids in my classroom getting into heated arguments about whether there really IS or ISN’T a Santa or a Tooth Fairy. Movie producers have some fun with this issue by creating movies such as “The Santa Clause” and “The Polar Express,” which inspire our fascination with the subject.

But while many kids grow up with a family tradition which promotes one of these beliefs, only to go through a period of revelation followed by ready acceptance, we know that for individuals with ASD, the loss and apparent deception can cause significant issues. The frustration and anger exhibited by this particular student is understandable!

So what are we to do? I would be as honest as possible with this student. Explain that these are “traditions” that are passed on from adults to children, from generation to generation. Often, when children grow up and become adults, they decide to pass the tradition along to their children by telling and acting out the stories of those traditions. Now that he knows it is simply a tradition rather than reality, he can help to pass the tradition on to his younger sister. There may be ways for him to be involved in that! (When I was a child, I helped put cookies on the mantle for Santa, knowing that my dad and our dog would enjoy a midnight snack, but still enjoying the “game”–especially for the benefit of my little sister). He might be able to do some research on those traditions (Wikipedia would be a great place to start, at http://en.wikipedia.org/wiki/Tooth_fairy), or help his parents or teacher write a report to describe a particular tradition and how and why it’s celebrated. Like a detective, he may want to help look for “clues” that show that it’s simply a tradition rather than reality (i.e. each mall has a Santa—one person can’t be at each mall at the same time!)

Depending on how seriously he is taking this, his parents might also owe him an apology, explaining that they had not viewed it as deception, but as the passing on of a tradition, but that they can see how it would feel that way to him. It’s important to validate his feelings, too!

The teacher is correct that this is also a loss-related issue. For more help on that (particularly if the previous suggestions didn’t help!), readers might want to check out Carol Gray’s “Gray’s Guide to Loss” here: http://www.thegraycenter.org/store/index.cfm?fuseaction=product.display&product_id=68

I’d like to close with a quote from the Wikipedia site I noted above:

“The Tooth Fairy is an example of folklore mythology sometimes presented to children as fact…The realization or discovery that such stories are make-believe is considered a part of the child’s growing up…Many families participate in the roles of this myth even when the children are also aware of the fictionality…as a form of play or tradition.”

If you were considering writing a Social Story™ or Social Article™ to help explain this issue, that’s a great place to look for ideas to get you started! (Other suggestions for using this valuable technique developed by Carol Gray can be found on our web site at http://www.thegraycenter.org/).

Best wishes, and thank you for the work you are doing to promote social understanding! If you have your own suggestions for dealing with this issue, please post those on our topic blog at http://thegraycenter.blogspot.com/ . We appreciate your participation!

Laurel Falvo, Certified Family Life Educator
Executive Director, The Gray Center for Social Learning and Understanding
http://www.thegraycenter.org/


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Integrating Sensory and Social

Welcome to SUN News–a weekly update for The Gray Center Social Understanding Network! Following is an article I originally wrote in 2007. Since sensory issues can be a factor in students’ ability to focus and to respond effectively in a school setting, the end of summer is a good time to revisit the topic.

It is likely you have heard of sensory integration. In a few words, sensory integration is the brain’s ability to process information taken in through the senses to screen out unnecessary input and “make sense of the rest” to aid in decision-making and appropriate responses to and interactions with our environment. But what does sensory integration have to do with social understanding?

When in a crowded room, whether it’s a classroom, gymnasium, restaurant, or store, a person with sensory integration difficulties may not be able to focus on just one thing. Instead, his or her senses are bombarded by all the surrounding sights, sounds, sensations, and smells. Rather obvious social implications accompany an inability to focus on a private conversation, or the instructions of a teacher in the front of the room, or the calls of a referee.

People who experience various sensations very keenly—whether it’s temperature, tags in clothing or clothing textures, or the firmness of touch—will encounter social difficulties when they are required to dress in a manner that is uncomfortable for them, or when they get jostled in line while waiting for the bank teller or the drinking fountain. Difficulties with the proprioceptive system can cause individuals to use too much force to close a door or to tap a friend on the shoulder. We’ve likely all experienced occasional negative effects of this either at home, school, or in the workplace!

And the compelling need that some of these individuals have to move–or to experience as many sensations as possible in a short amount of time (or, conversely, to avoid these things at all costs)–can affect the social interactions of these individuals as well as those around them.

While we work to teach social understanding, sometimes individuals have all the information and “rules” needed to carry out a social task, but they simply cannot provide adequate or appropriate responses due to the fact that their brains and bodies are focused on immediate sensory input and needs instead. A true social understanding approach will take into consideration the effect that difficulty with sensory processing has on behaviors and responses.

For help understanding and responding to sensory integration dysfunction, I recommend the book, “Understanding Regulation Disorders of Sensory Processing in Children.” My “Social Response Pyramid(TM) KIT” contains an instructional DVD showing me working with my own children to describe how sensory dysfunction and strong emotions can get us “stuck” and unable to access strategies for interacting effectively with others. The tool is helpful for staying calm and identifying choices that will help move us in the right direction. Both resources (and many more) are available at www.thegraycenter.org.

If you wish, you may share your own suggestions and strategies on our topic blog at http://thegraycenter.blogspot.com/. Thank you for your help in promoting social understanding around the world!

Laurel Falvo, Certified Family Life Educator

Executive Director, The Gray Center for Social Learning and Understanding


Be Someone Who Gets It

Our local newspaper has a slogan that reads, “The Grand Rapids Press: Be someone who gets it.” It’s a clever play on words that I find quite “catchy” (no pun intended). Not only do they want each reader to be someone who physically receives the newspaper, but they’re implying that those who read the Press “get it”—understand the world around them because of the information they’ve read.

I’ve occasionally heard a person refer to him or herself as “The Social Guru” or “The Queen/King of Social.” They’re claiming to “get it”—to both understand, and to respond effectively to social stuff. Social success, we’re led to believe, is something they have achieved for all time.

I believe that there are some people for whom social success comes more easily. They are good at “reading” and responding to unwritten social rules and conventions. They have a personality which helps to put others at ease; perhaps they’re outgoing, kind, funny, and good listeners. Yet I also fear that making claims which seem as though they have achieved the highest level of social success—and are able to sustain it through all time– can be deceiving for the rest of us who sometimes struggle to get even a taste of social success.

You see, I believe that we all struggle—at least at one time or another—to achieve social success! Adolescence is an age when many young people struggle socially, yet each one may fear that he or she is the only one to feel that way. We all have done or said things that didn’t work with another person, and we’ve been left feeling awkward and unsuccessful for a time. Some people feel this way some of the time; others may feel this way almost all the time!

Many “social rules” cannot be applied 100 percent of the time and lead to social success each time. For example, at my house, we remove our shoes when we walk in the front door, because it helps to keep the carpet clean. If I apply that as a social rule to every house I enter, believing that it is the most respectful thing to do, I can end up offending or frustrating hosts who don’t want me walking on their floors without shoes! Some table manners that I learned as a child and have passed on to my own children, may actually appear rude when I’m in another country. Cultural differences and personal preferences are just a couple of things that can make it difficult to achieve consistent social success.

So how can we be someone who “gets it” and experiences the joy and fulfillment of interacting effectively with others?

  1. Keep an open mind, being aware that the things we’ve learned about social success may work better with one person, or at one time, than another. Always be open to learning new things, about ourselves, and about the people around us. Remember that “social” changes from one interaction to another, because we’re interacting with unique individuals!
  2. Take time to think. Unfortunately, the nature of “social” is that it often appears to happen at lightning speed! Sometimes we can let others know that we need more time. Other times we can use calming techniques which help us focus on the important details without getting “stuck” in our emotions or fears, or our assumptions of personal social grandiosity.
  3. Keep trying! We all experience social failure—or social stumbles—sometimes. Don’t give up, but figure out what you can learn from the experience, and work to apply that knowledge in future interactions.

Sometimes we make the mistake of assuming that those with a diagnosis such as autism spectrum disorder (ASD) are the ones who are awkward or unsuccessful socially. While it’s true that they may have a more difficult time reading unwritten social rules and responding effectively with others, we all need to be working at being someone who gets it!

Are you someone who gets it? I’ll be the first to admit that I’m still working on it. I’m thankful for the social successes that I’ve experienced, and am trying to be deliberate about learning from my failures. You can respond to this article here. Your input is highly valued as together we work at “getting it!”

Laurel Falvo, Certified Family Life Educator

Executive Director, The Gray Center for Social Learning and Understanding

www.thegraycenter.org

P.S. There are many great resources available to us as we work at “getting it”–and help others to do the same. You can find many of those at www.thegraycenter.org!