Autism and Worship
Many schools are making efforts to educate their teachers, staff, and students about autism spectrum disorders (ASD), and to fully include those with ASD and other diagnoses. Laws mandate some aspects of this, colleges provide at least basic instruction to future teachers, and advocacy groups work to ensure that progress is ongoing.
There is another area where such awareness is needed, but frequently is not available. That is in our places of worship. Many people who gather, perhaps weekly or even more often, are not aware of autism and its implications for those with the diagnosis and their loved ones. Often staff is comprised of volunteers who teach education classes, lead worship, or organize social events. Even paid staff may not have had any training in the field of autism.
Unfortunately, the “body of believers” may perhaps inadvertently end up excluding those with autism because they do not understand the reason for their differences. An inflexible worship tradition may leave no room for either frustrated or happy outbursts from those with ASD, or for a need to move, fidget, rock, or engage in some other form of “stimming” behavior. Crowded classes taught by dedicated but untrained teachers are set up to meet the needs of the majority, with the minority sometimes being asked to leave or sit quietly in the corner. The sensory environment, with its sounds, lighting, movements, or smells may be distracting for the individual with ASD, or may make it impossible for them to be a part of the worship service. Similarly, the “social environment” commonly found as worshippers interact with one another can isolate those for whom social interaction is awkward or difficult. Those with ASD may find that coffee times, liturgy, potlucks, outings, youth groups, etc. hold the potential for fear, loneliness, or overload rather than enjoyment.
National studies indicate that more than 80 percent of people with disabilities do not attend church, though many want to. Their families are frequently affected, also, by the lack of awareness or enfolding by fellow worshippers. Many parents take turns worshipping so that one parent is available to be home with their child. Others simply give up, often after facing painful rejection or insensitive comments.
Obviously, there is much work to be done in this area. The good news is that awareness of the problem is increasing, as are measures to address it. The Gray Center is currently collaborating with several area organizations and churches as part of a worship renewal grant received from the Calvin Institute of Christian Worship . The purpose of the grant is to enable churches to raise awareness and provide training so that those with disabilities (any disability) can be fully included in worship. If you live in the West Michigan area, you can attend a workshop at First Baptist Church of Middleville on Saturday, February 2nd. Details are available at www.thegraycenter.org. (This workshop specifically addresses the needs of those with ASD, although my Social Response Pyramid presentation contains information that can be applied much more broadly). Other church workshops are being planned for later in the spring in Holland, Michigan–watch our web site for further details.Several resources are available to help parents and worshippers better understand ASD and how to minister to those with the diagnosis, as well as their families. Some of my favorites include, “Autism and Your Church” and “Helping Kids Include Kids with Disabilities” by talented educator/author/presenter Barb Newman, as well as Sondra Williams’ book, “Reflections of Self.” As a person with ASD, Sondra offers incredible insight into her ability to understand God, as well as some of the issues she has encountered as she has looked for a comfortable and welcoming place to worship. The Gray Center is pleased to make available a presentation that Sondra gave at a church workshop last year. That can be purchased and downloaded at http://www.thegraycenter.org/store/index.cfm?fuseaction=product.display&product_id=188. (NOTE: The Gray Center will be committing 100 percent of the proceeds from the sale of Sondra’s book, DVD, and MP3 download through April to our new Sondra Williams Endowment fund. Details of this new fund will be added to our web site as they become available.)
Friendship Ministries is an international, inter-denominational ministry committed to sharing God’s love with people who have cognitive impairments and to enable them to become an active part of God’s family. They have many educational resources available, including information about forming “Friendship Classes” at your church. This is an exciting ministry that provides a welcome place for those with disabilities, with lots of one-on-one interaction and instruction. More information can be found at www.friendship.org.There are many other wonderful resources, including books, web sites, and organizations dedicated to promoting awareness and providing practical assistance in this area. If you know of others that you’d like to recommend, please post those here.
“Social understanding” is a concept that is important in all aspects of life, including our places of worship. Thank you for the work you are doing around the world to meet the unique needs of worshippers with disabilities!
Laurel Hoekman, Executive Director
The Gray Center for Social Learning and Understanding
P.S. Gray Center lakeshore events being planned: OPEN HOUSE, Thursday, Feb. 7 from 4:30-7:00 (you’ll receive a FREE gift just for participating!), and Girls’ Group, Wednesday, Feb. 20. Go to www.thegraycenter.org for more details. And you won’t want to miss our next Family Resource Expo on Saturday, September 27th in Grand Rapids! Last year we had about 40 exhibitors, four presenters, lots of activities for the kids, and over 500 attendees!
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